I suffer from an autoimmune disorder. It is not currently curable. I do my utmost to lead a complete life in spite of it, but the reality is I rely on the graciousness of the people who care about me to make it through bad flare ups. I am a burden to those people during those times especially. I struggle with that fact immensely. To say …
I suffer from an autoimmune disorder. It is not currently curable. I do my utmost to lead a complete life in spite of it, but the reality is I rely on the graciousness of the people who care about me to make it through bad flare ups. I am a burden to those people during those times especially. I struggle with that fact immensely. To say nothing of the fact that the flare ups are miserable and debilitating. There is nothing empowering or noble about any of it.
The idea that it would be somehow just to continue to impose that burden if an effective cure were available, that it would somehow be an erasure of my personhood not to celebrate and enable my condition, is staggeringly inane, detached, and selfish. The popular political zeitgeist of the day does far too much to sanctify and lionize suffering, and precious little to ameliorate it.
I suffer from an autoimmune disorder. It is not currently curable. I do my utmost to lead a complete life in spite of it, but the reality is I rely on the graciousness of the people who care about me to make it through bad flare ups. I am a burden to those people during those times especially. I struggle with that fact immensely. To say nothing of the fact that the flare ups are miserable and debilitating. There is nothing empowering or noble about any of it.
The idea that it would be somehow just to continue to impose that burden if an effective cure were available, that it would somehow be an erasure of my personhood not to celebrate and enable my condition, is staggeringly inane, detached, and selfish. The popular political zeitgeist of the day does far too much to sanctify and lionize suffering, and precious little to ameliorate it.