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Dana Bouton's avatar

As a Jewish white woman with multiple recurrences of Lymphoma since 2018, I have at least 20 prescriptions that are filled every other week by my local pharmacy and sometimes by specialty pharmacies as well as the pharmacy at the cancer hospital.

Where is the white privilege for me? I stand in line just like everyone else . Many of us are in wheelchairs with no hair , sallow skin and eyes that are dark and shadowed. We can barely stay awake, or we are nauseous, cold and hurting from neuropathy . Nobody is focusing on people’s ethnic or sexual differences. The pharmacist is a lifeline for every patient. It’s life and death, not pronouns and sexual identity.

If anything needs to be taught or needs more clarity is working with patients who come from dozens of countries and struggle with communication. Usually I see the daughter or son translating for the patient, but sometimes the patient is alone and barely understands instructions in English.

This is the real issue, besides pharmacists making sure the latest medications are available for people like me.

The state is clearly misguided in their efforts to force pharmacists to be programmed on issues that pull them away from the more pressing issues.

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Madeleine Rowley's avatar

Dana, I sympathize with you as I just watched my mother go through radiation for a second time. I wish you a full and speedy recovery. Refuah shlemah!

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Dana Bouton's avatar

Thank you!!!!

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Louis Macareo's avatar

More importantly, hang in there Dana. Though I am a physician, I still cannot imagine your struggle. On top of the recurrent lymphoma is the incredible hassle and exhaustion navigating our medical system. All the best.

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Dana Bouton's avatar

Thank you so much. Yes, I have had many grueling treatments, none of which has given me long lasting remission. I still consider myself lucky. I live close to City of Hope, a world class hospital and I speak English. We can afford our insurance, albeit with expensive premiums.

I have witnessed many families who struggle with language and navigating the hospital with its many corridors and outbuildings.

For this reason I started an endowment at City of Hope to help those who need gas money, rent paid, groceries, child care, anything to support struggling families.

I don’t need indoctrination from the state to tell me what type of people deserve financial assistance.

We all suffer the same way when we are sick with cancer and forced to live in hospital for long term treatments.

If I could not afford my medications and needed financial assistance , would pharmacists pass over me and work harder to find ways to support patients of color or a specific sexual preference?

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